At the moment she, together with Michael's cooperation and agreement, is trying to put up his peg feed (the one direct into stomach) by 10ml per hour, per day. He's now on 30, since yesterday and they've agreed it will go up to 40 ml tomorrow.
I wanted to know if there's a possibility of Michael going back onto tpn (obviously would have to have another line put in). This couldn't happen at the moment because of those little bugs anyway and it would be nice if he didn't have to. But generally it would be based on a citrolene test (sure that's not the spelling and I may have even misheard the pronounciation). That test shows certain proteins (may be amino acids?!?) in the villi (intestinal villi are tiny, finger-like projections that protrude from the lining of the intestinal wall). When Michael had his scope last week, I could see all the very healthy looking villi floating around on the monitor!! There are certain proteins (or is it amino acids?) in the bowel post op and they are looking for those to lower and the citrolene to increase. Once they've increased, it means the bowel is absorbing the correct nutrients and doesn't need the tpn nutrients. Just taking bloods now to do this citrolene test.
Not sure if the above is very clear but basically absolutely no pressure in eating; constantly checking to see if villi is working properly and most importantly they wouldn't let Michael waste away!!
With all the feed that's going into Michael's stomach, he still has to have his tube drained occasionally as the feed makes him feel quite bloated and full. The nutritionist again reassured us that this is not problematic as the amount that goes in more than exceeds what's coming out!!
So much to take in (pardon the pun!)
xx
Justine
read my blog:www.the-transplant-wife.blogspot.com
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