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14 August 2012

I'm glad to say that things seem to be slowly improving. Yesterday I left home around 10.30am and, can you believe at that time of day, got caught in M25 traffic. Anyway, LBC kept me highly amused talking about successful sportsmen who were born on 23 March and was this therefore a significant date. I did nearly call in to comment on how it must be as that's Michael's birthday and what a great sportsman he'd been in his youth before Crohn's had struck, and how strong he'd had to be over the last few years. Needless to say, I didn't call in!!! When I arrived, Michael was in a deep sleep - he heard me arrive and mumbled something before going back to sleep. Didn't think ththat was too positive but a short while later, he did wake up and seemed much improved since the day before. A little heavy eyed but nonetheless improved. His pain relief pump had been taken down and he was purely on oral drugs. Still in intermittent waves of awful pain but definitely more with it. And what were we left to watch with no Olympics? Murder She Wrote! Talk about an easy watch - can't believe when I used to watch it all those years ago that I didn't guess who the murderer was within the first 5 minutes! Midsummer Murders, which followed, was a tad more complicated :) With hospital food being as delightful as always and no means of heating up food, I had to think of things that Michael would eat, cold!! We went for tongue (out of a packet as I refused to cook such a revolting thing) and chips from the canteen. I'd like to say he wolfed in down but I was there to ensure he finished it. Chopped liver and pita break for dinner. Suggestions welcome! Today again was more improvement. Looked much better and not as drugged up. He'd seen the surgeon who again was happy with his progress and suggested it was time to get up and shower - the warm water may help the supposed shingles. After lunch, he plucked up courage, showered and washed his hair. Did he feel better? Perhaps no, but he definitely looked and smelt better :) The Dermatology Team came round to have a look at his itchy painful areas. Far from happy having all these people looking at places no one should have to look at!! Anyway, it was decided that it was not shingles (apparently shingles does not spread and only affects one side and as Michael's had spread, this was a sure sign that it was not shingles). So what is it? Maybe an infection or a reaction to something but now no way of knowing as it's clearing up and therefore impossible to tell. Typical - another 'something' that can't be diagnosed. More cream given to rub into affected areas - Michael can do that himself. So - how long will he be in? Who knows. Hopefully next time I write, I'll be able to tell you. Till next time x

12 August 2012

Stoma Reversal Time!

Well it’s been quite some time since I’ve written. Has this been because life as returned to normal? I wish. It’s been easier – not many visits to Oxford – although still lots of complications but generally we’ve been getting on with things. You have to don’t you? Michael’s definitely not one to sit back and moan and we’ve been keen on having a ‘regular’ life. Little bit of socialising and thoughts of what to do with life when Michael really is strong enough to return to the working world (and me too!). Basically nothing very interesting that people would really want to read. But now, the journey continues as Michael has just had his stoma reversal. Yep, that ‘thing’ he took so long to adapt to and then, happily showed anyone, has now been tucked back inside!! We had a week’s notice that it was going to happen. We thought originally that he was going to be scheduled in for the end of July and when the date came in, typical, we’d been given Olympic tickets for that day. As much as we’d like to have postponed the op, the reality was he wasn’t going to wait especially as the likelihood was it wouldn’t then be till mid September. So the great day planned with Michael and the three kids (a first in a long time) never happened. He went to Oxford and we went to the Games (and how amazing it was). Thankfully the op which took place early afternoon on Wednesday was a success. But..... yes, where Michael concerned there’s always a but. I spoke to Michael that evening, he was obviously drowsy but in fairly good spirits. After sorting the kids on Thursday, off I went back on that well known trip to Oxford. He was very uncomfortable as he’d developed a haematoma (bit like a bruise but worse) which is ‘one of those things’. This was extremely painful but he was on his fentalyn pump which he has used previously for pain relief. Because the pain was so severe, the dose had been increased (whereas before he had just pressed a button when needed and it had given a dose – obviously controlled amount – they had upped it so that there was also a background amount of drug always being pumped through). Hadn’t managed to get out of bed because of the pain but was moving around in the bed. Had to have an enema (joy for anyone!) just to clear out any mucus that was remaining – all that and no mucus!!! We spoke on and off, in between him dozing and groaning but it was only day 1 after a general anaesthetic. Saying that, I think we both thought it was going to be a quicker recovery - I’d prepared food for him but he was only on sips of water (actually lucozade – but once I saw his glowing orange teeth we swiftly switched to squash. I know, water’s better but he refuses!!!). At around 5pm, he started dozing again – I was happy as he was exhausted. Starting twitching – nothing unusual but then....... it was what I can only described as ‘convulsive’ twitching which worried me a little (we’re talking seconds here) at which point I moved closer to him, gently calling his name – no response. Then he just stopped, stared ahead (not even sure if his eyes were open or closed) and went whiter than white. I pressed the nurse call button (actually it was his pain relief pump!) and then ran outside where thankfully a nurse was sitting at her station, called her in and said something was wrong. This really did happen in a matter of second – quicker than it’s taken me to write this. All I can remember is sheer panic – calling Michael’s name out and him with absolutely no response. That’s the time I dashed to the nurse. She came running in by which time he was a little alert and actually knew her name (which was positive as she wasn’t actually his nurse). Michael was very disorientated – both Michael and my first thought was that it was his petit-mal returning (yes, as well as everything else, he’s suffered with epilepsy). That would be totally unfair. The two Reg’s on the floor came rushing in, proding, etc and asking lots of questions. Their initial assessment was it was too much Fentanyl, which affects the breathing. Although Michael was ‘with it’ at this stage, he was confused, clammy and obviously worried (he could see the panic on my face which didn’t help). This ‘overdose’ meant he then had to have an injection to reverse the affects of the drug and then also ‘hold off’ from the drug for a while. More panic for Michael ‘how can I cope without my pump?’ At this stage, I still wasn’t convinced this was the problem – obviously we know better than the Doctors!!!!! I also felt helpless knowing that Michael was going to have to be pain relief free while his vitals were being checked. Thankfully all the checks came back clear so it looked like that was the problem. It was decided that he would move rooms to a more high dependency room where nurses would be there round the clock if there were any more complications. Later that evening, the pump was put back on, without the background amount being administered. It was the longest few minutes of my life. I wasn’t happy about leaving but I had to get back home. I didn’t go to the hospital during Friday and it didn’t help when I got ‘confused’ calls from Michael telling me he was in so much pain. I told him to leave the phone and I would liaise with the nurses direct to find out how he was. He’d had a terrible night (although I didn’t realise how bad until I got to the hospital that evening) and because of the severe pain, they’d taken him back down to Theatre to make sure everything was ok. Thankfully all was ‘perfect’ but why so much pain? Aaron and I (2 other lucky children are away in the sun) then went to Oxford early evening. I decided to use those credit card points I’d accrued before they expired and booked us into a hotel nearby for two nights. Couldn’t stomach the thought of driving back and forth the whole weekend. We checked in and then went straight to the hospital. He was in a worse state than I expected. Apparently he had another ‘turn’ in the early hours of the morning and they’d decided to stop using the Fentanyl altogether and give other pain relief. Hhe’d been in excruciating pain and he really thought ‘that was it’. Maybe I was better of not knowing that this had all happened whilst I wasn’t there. He was a little more comfortable and they had at this point suggested it could be shingles AGAIN. How unlucky can one person be? Not only shingles, but in the nether regions!!!! Meanwhile, bloods to confirm take about 4/5 days. As much as I don’t want him to suffer such pain at least it would be an answer. Aaron and I ate our packed supper (Michael and I had thought it was going to be a packed supper for 3!!) while Michael dozed occasionally, whilst of course watching the Olympics. He seemed a little more comfortable when we left him. On Saturday morning, rather than dashing up the motorway, we had a nice lie-in and then a leisurely breakfast. We found Michael much the same – comfortable intermittently, with periods of agony. His surgeon came in and suggested anaesthetic cream for the nether regions and also that the rectal catheter be replaced with another type (how can one be better than another – ouch!). He’d had the catheters put in on Friday as he’d been in too much pain to worry about going to the toilet. The pain of the hematoma and the shingles was exhausting. He also wanted Michael to start eating and drinking – not easy when you’re in an NHS hospital. Anyway, when the catheter was changed that was Aaron and my excuse to go and buy Michael an icecream. We left Michael early afternoon as he was more tired and definitely time for a swim (for us anyway). We returned to the hospital just in time to see Mo win another gold (go GB). Michael had spent the day trying not to press his pump full of new drug as he was so worried he would have the same problem again. The nurses reassured him this would not happen but I’m not sure he was convinced. We all watched the diving – tense stuff – and it was great to see Tom Daley win a bronze. Oh yes – I guess I should mention that Michael was comfortable-ish. We did get him to eat an M&S tuna sandwich but he wasn’t willing to give the lemon and lime jelly a go. I was that nag willing him to eat as always. Sunday morning we drove up the motorway – I mean we had another lie in and then started the day with a swim, Jacuzzi and sauna – bliss, breakfast and then to the hospital. Michael had slept the latter part of the night, from about 4am (shame – cause we’d left him – and missed Tom getting his medal- because he’d seemed so tired). For a change, he had been left to sleep rather than being woken for a lovely breakfast of cold toast and tea. Only problem was of course, he hadn’t eaten  Again, intermittent bouts of terrible pain, although he hadn’t put any of the anaesthetic cream onto his sore bits – which he then did. It doesn’t take the pain away completely anyway. The surgeon came in again and said he really wanted both catheters out. Not good to keep them in and rectal one didn’t seem to be working too well and he was concerned that eventually everything would back up (sorry to be so specific) and cause problems where the sutures were internally. And also he wanted Michael to stop being immobile at this is never helpful in recovery. Michael wasn’t happy but knew he had to agree. Managed to get Michael to eat another sandwich (not very exciting I know but a bit difficult to get him anything else). Funny thing is, he makes me feel bad for keeping pushing him to eat but he seems to wolf it down. He then prepared himself for the first thing to be removed. Aaron and I stood outside the room – a loud yelp and we knew it was out. Back to using bottles for Michael. The remainder of the afternoon was its usual pattern of sleep, pain, bit of a food, pain, Olympics, sleep, pain, but he seemed to be coping ok – ish. By 4.30ish (sorry – lots of ishes in this blog) the pain seemed to be getting worse and Michael really wasn’t sure what to do with himself. His nurse had told him to use his pump as often as was allowed to prepare himself for the ‘other removal’. Not a nice thought. He’s never ever wanted me to sit ‘s there oohing and aahing at his moaning as that’s obviously completely unhelpful and I do always try to be positive and not let it all show that it’s getting to me but I really wasn’t sure what to do to help. Was conscious that I didn’t want Aaron to see his Dad suffering;; and also didn’t want to tell Aaron to leave the room as that maybe made more of a deal of the whole thing. Only a short while earlier Michael had been telling (actually constantly repeating) Aaron that he hoped he had all the pain so that his children never suffered. Meanwhile by this stage he wanted me to take some of the pain and then happily offered some to Aaron. Why can’t Michael’s recoveries ever ever ever be bog standard. We left just before Michael’s nurse was about to do the ‘removal’. Somewhat painful I’m sure and then the finale of using a commode (hospitals are so degrading – although I’m guessing me detailing it doesn’t really do Michael’s cred much good). By the time we got back home, he’d texted to say all removed and he had a successful finale. Pain was still there although perhaps a little easier (nurse seemed to thing the balloon which keeps the catheter in place wasn’t helping the pain). And so, day 4 ½ over. We both thought the weekend would be slightly different. We knew he wouldn’t be home but naively believed he’d be able to have day release and that the three of us would have left the hospital for a few hours. How wrong could we have been? It’s been another rollercoaster – and I absolutely hate theme parks. I’ve managed to hold myself together. Actually the best way I’ve managed this is to keep it all to myself – I know it sounds ridiculous but actually I can’t really cope with everyone worrying about me and also I don’t want Aaron to feel like I need the support. If I keep a brave face on everything (I guess pretending), it gets me through. Once I start telling my story, I give in and it wasn’t fair to Aaron (who’s such a good, gentle, caring, son) , who I was spending the whole weekend with, to be put in the position of feeling like he needed to support me. Also, it’s easier for the kids to cope if I play thing down (I think?). Apologies if you feel I should have told you – just my way of dealing with things and why should everyone worry when I can do it so well. If you’re reading this and you’re on holiday, I feel I can happily (not convinced happily is the correct word) blog about this knowing that it’s pain which will eventually go – no point in unnecessarily worrying anyone when there’s nothing you can do. Yes, he’s still in pain but I believe all the trauma is over. He’s been checked and double checked and all looks great - a beautiful bowel apparently (sorry – no pictures). We’ll see what tomorrow brings. Not sure what the two of us will watch on tv now the Olympics is over. I really hope the pain eases but from what I remember when he had shingles in his eye, it takes a good week. What more can one guy take? I will keep you posted. Surely things must get easier.

28 April 2012

Been a long time......

 It’s been a while since I last blogged.  To be honest, I really haven’t known what to write – although life has been far from normal, we’ve at least got back to some sort of routine and Michael’s been home.   Well he’s been home more often than not – the occasional hospital stay and the bi-weekly trips to  Oxford for routine tests.

And then, two weeks ago, having gone to Oxford for what we thought was routine tests, Michael was admitted for ‘routine’ fluids (he’s quite often dehydrated because of complications relating to the Colon not working.   This is because of his stoma and there is now talk of him having a reversal earlier to solve this problem.  That’s another story which I’ll go into later.).    He went in on the Thursday (half term – fabulous!!!) and all plans were for him to leave on Monday after he had his balloon inserted into this stomach.   Now this is the problem with not having written for so long – so much information......   Basically it’s been discovered that the sickness Michael has been suffering from, although originally  put down to bacterial problems in the gut, has in fact been because the stomach muscle which pushes all the food down, is very tight and therefore not doing it’s proper job.  When we discovered this it was a bit of a ‘told you so’ moment – having been querying whether the sickness could have been related to the stomach (you may recall that he had stomach problems prior to his op which they said would be solved once he had a new bowel).  Anyway, the balloon is meant to stretch the muscle so it can work properly.

So balloon all scheduled, and he would be able to come home Monday afternoon.    But (and there always seems to be a but nowadays) on the Saturday , 10 minutes after we had left from our ritual visit, he came down with terrible shakes, temperature, etc – yet another bug. So..... regime of antibiotics  while Michael had to deal with the hot and cold temperatures.   Think we’ve been here before.  He was strong enough to have the balloon inserted on Monday.   I wasn’t there – it was the kids last day of half term and, not for the first time, I was pulled in many directions, and the kids won! 

Like most of my life at the moment, the rest of the week was a bit of a haze – continuing antibiotics and various tests and waiting to see if the balloon would work.  To date, nothing and he’s now scheduled for botox this coming Monday.   ????? I can hear you all say but you’ll have to wait for more information on that one.

Meanwhile, we were quite excited to receive a letter with the date of Michael’s stoma reversal.  Very big news for Michael – we always knew reversal would happen and more than likely around a year after the transplant.   Because of the dehydration problems, the surgeon decided that it should be earlier and being given a date was (notice the was???) fantastic news for Michael.   A real bonus.   On Wednesday he had a test which is check that all is ok with the bowel so that reversal can go ahead.  Yippee – all fine.   The date coincides with Aaron’s GSCEs, which obviously concerned us, but we decided that as long as we were completely open with our discussions about it, with Aaron, then there shouldn’t be a problem.   Something else for our poor children to deal with.

By the afternoon – it felt like our hopes had been dashed.   We were somewhat surprised (as well as hugely disappointed) to be told that in fact reversal could not happen until Michael was at a good nutritional level.  Apparently reversal can disturb the nutritional balance of the body and therefore it needs to be at a good starting point.   Well this was complete news to us –  something we’d never heard before.  Actually I’m not sure we’d ever heard about any nutritional balance.    I think both of us have been fairly accepting of the all the information we’ve been given – we totally  understand  and always knew that with Michael being only patient no. 11 that he was a bit of a ‘guinea pig’ and I guess it’s not bad that it’s taken  just over 6 months for us to get to the stage of being so frustrated.   Not even frustrated because the reversal may be delayed but annoyance that we’d thought it was pretty much fixed that it would all go ahead.  Nutrition was somehow just thrown at us.   If only it was as simple as throwing it back L 

So now Michael’s feed (and that’s another thing – never really realised how long he’d be on this bloody feed for) has to slowly be increased so his body has the necessary nutrients; he’s now on something or other for his pancreas which I believe is something to do with digest enzymes;  he’s not allowed to eat very much because the balloon doesn’t seem to be working (will explain more in a a bit) and generally I’m not really sure where we have progressed to.   Oh yes – his bowel is perfect it’s just a shame it can’t be worked properly because of all these complications.

The botox is not a present from my husband because of all the extra frown lines I now seem to have.   Apparently it’s something that will now be injected into the stomach muscle to relax it.  Up until today it couldn’t be done for a few more weeks because the stomach had to get over the balloon.   But today, when I thought perhaps I would be collecting Michael from hospital, he gets to ld that the procedure may actually get done on Monday and therefore he’ll b staying in.   Well that just made my day.   There was me thinking how lovely – all the kids are out this evening and Michael and I could have a lovely quiet evening together.   But oh no – here’s me, sitting on my own, watching some naff film.  Had a good look at all the bottles of wines I thought could share the evening with me and then decided it was pointless as I don’t really like wine and what was the point of opening a bottle of wine so I could just use it in the cooking!

So why am I blogging today when I haven’t for so long?  I think mainly so I can remember a little more of our journey.  You can most probably tell that I’m not in the most positive of moods today.  I generally just get on with it and as I said, we’re in a sort of routine.   But honestly, I’m fed up waiting for things to be normal; for Michael to eat and have a normal life; for us to be able to go out together; for him not to constantly feel sick; for me always have to put a brave face on things; for us always trying to be positive in front of the kids; for me feeling like a single parent.   I’m just fed up of it all.

I think maybe now it’s time to sign off.  Another early start tomorrow – our lucky middle child at DofE tomorrow.   How wet is he going to get!!!???!!!

Perhaps now I’ve blogged again, I’ll do it more often.  Putting moans down on paper is very therapeutic – shame it doesn’t change anything xx

19 February 2012

I am still here

Well it's been sometime since I last blogged, but lying in bed this morning at 4am - unable to sleep,having woken myself up thinking it was Monday morning and that I had forgotten to take Lauren to a Bat Mitzvah party the night before - I was dwelling on my life and thought I should blog, a) cause otherwise you'll think I've left the planet and b) thought it would be a bit of therapy for me!!

If you're reading Michael's blog, you'll see that our life revolves around the feed and his output - joyous!! I have to be totally honest and say I'm not reading his blogs much now as living with it is one thing; having to constantly read about it is too much. There may have been a lovely valentines card for me this week, together with some yummy chocs (which I eventually asked Nathan to hide from me as I didn't have the willpower to not eat them all in one day!) but romance really is dead at the moment. Michael generally looks really well (someone did comment that he'd lost weight but when we're were last at Oxford, he gained, so I think that's actually his face just going back to normal after the steriods) although the more I think about it, he could actually pass as a Dr Who character, with so many tubes/attachments.

I won't say it's easy with Michael at home the whole time. It's lovely while I type this that the corner chair is empty and his computer is firmly shut. We do take the dog for walks but other than that, he generally sits in front of the computer and tv screen, with phone in hand. I did suggest that perhaps he should take up cooking (again) but that was a firm 'no' - think that's all related to 'food issues' which I'll discuss later. He's trying very hard to see what his future can/will be business wise when he's fit and healthy and it's great that he's focused enough to do this. I guess though it's the feeling that we're together so often but it's not really quality time and not like when you're working and 'time off' is fun. It's just ...... being at home together. Those days of saying goodbye in the morning and then catching up in the evening are a distant memory (not sure I can even remember it!) and I look forward to those times again, when we can have an occasional day off together which is exciting. I know, when life returns to 'normal' I'll be moaning that we never spend any time together.

My new hobby is baking - no bought bread in our house anymore. Have even ventured into croissants which were a great success. I've always loved baking - just the not eating it that's the problem. We do have a joint task this week though of hanging wallpaper in the lounge. Had a slight water issue a few months ago and now the wall has dried out, it's time to decorate. I prepared it all before the half term and now I'm just hoping once the paper is hung that the leftover paint we have in the garage will match up. There's no way I'm painting the whole room, so if not, nobody look in the corner of the room :(

My frustration (well one of them) at the moment is Michael and food. I'm trying hard not to pressurise him in anyway but I'm sure if you ask him he'll say everyone is pressurising him. He's back to his old habits of eating when he fancies - which is never. Generally he'll always have breakfast but after that he'll only ever help himself to chocolate, chocolate and crisps. At dinner time he'll usually have a taster of what we're eating, again under sufferance, and lunchtime he'll eat if I mention food. The idea is that he eats little and often, when he fancies. His idea is that he eats nothing and never, when he fancies. I think for the last month or so everyone seems to be so focused on his 'liquid feed' that he hasn't had to think about solid food. Michael has always said if he could have a Mars and a tablet a day to keep him going, he'd be more than happy. Now...... he can have his liquid feed instead ..... arghhhhhhh.

Thankfully Michael is now driving so at least now we can split the chauffeuring duties. Only problems is, I constantly worry when he's in the car on his own. Ridiculous I know - he's a grown man, but I'm so used to doing all the driving and knowing where I am and how long I'll be (if you know what I mean), that when he's out and about I'm constantly clock watching. Today he picked up Nathan from the stables (going to have to train him to start doing the early shift and taking him). 10 minutes later, the phone rings. There was me thinking 'god forbid accident, car problems, got lost.....' and meanwhile it was Nathan asking if I could run a bath in for him. I'm just going to have to re-train myself to acknowledge that Michael is convalescing, not incapable (guess that's a matter of opinion!).

We're back to Oxford on Wednesday, where I'm hoping this week's list will be answered and I'll understand a bit more of the recovery process. In the same way, when Michael was in hospital and the Doctors used to come in and I'd happily accept and acknowledge everything they said, then the moment they walked out, I had a list of questions, it's now got to the point where I'm not quite sure the direction we're going in recovery wise. How long will he be on this feed; how do we get him to eat food without any pressure
and without realising he's doing it, what to do about the anti-sickness patches which aren't working (as they are keen to get rid of his PICC line which is where he presently injects his anti-sickness)????? We'll see what the day brings.

Well, it's been lovely sharing my thoughts with you all. Do feel a bit 'lighter' now.

Till next time.


8 February 2012

Got home eventually!!!

Shortly after my last blog, Michael reappeared and as expected they had to take bloods from his PICC line. We then saw the transplant nurse - quick discussion on how Michael felt he was progressing and then school uniforms and teenagers!!!

Michael then had a quick meeting the the pharmacist to discuss change in drugs and back to the Ward to see the Surgeon and Nutritionist (and to collect Michael's phone charger which he left on his last admission). Scope was undertaken but as the Surgeon was so pleased with how everything seemed to look, he didn't do a biopsy. We had long discussions with the Nutritionist and it was agreed that Michael would change feed (a lower sugar level feed as sugar does not help when there is bacteria in the gut), another course of antibiotics as still bacteria in the gut and eat anything Michael fancies.

We didn't bring up the subject of Michael's PICC line as we knew the Surgeon had plans to remove it. We thought we'd got away with it, but just as we were finishing, the Surgeon remembered. Poor Michael! Anyway, it was agreed that Michael's going to try the patches and oral anti-sickness drugs; see how he responds and if all ok, the PICC line will be removed. The Surgeon said that 'psychologically' that would be big progression for Michael - funny but we both don't see it that way. If it was Michael's stomach tube that was coming out, then that really would be progression. I look forward to the time I can tell you that he'll be tube free!

Then on to the Pharmacy to collect all the drugs, which obviously weren't ready so a pit-stop at the cafe (that's cafe not café) for a drink. Naturally the half hour wait they told us was in fact 1 hour, by which time it was just past 2pm.

We were very lucky with the traffic again and it was only 1 hour home. I have to admit I am getting rather bored with listening to Radio 2, as that's the only station I manage to get on the drive out of Oxford. When Michael first went into hospital, it was quite nostaglic listening to Steve Wright - happy memories of my teenage years. But now - finding it a little boring so any suggestions of other radio stations would be appreciated. I guess Michael and I could also pass the time talking but on the other hand, we'd already spent time in the car on the way there :)

So another fortnightly Oxford visit over. Feel happier today that things are progressing. Happy with everything we discussed today. It's exactly four months to the day since the op, and I think Michael's doing really well. Yes, life is far from normal but as we keep discussing, we haven't had normal for many years. We're coping and I guess that's good in itself.

Tomorrow, I will be back to my usual unexciting, unbloggable life but I'll report back at some stage.

I haven't blogged for some time as I felt no one was interested in my daily life of dog walking, cleaning, baking keeping Michael company and giving just the right level of sympathy and generally just keeping myself busy whilst we wait for some major breakthrough in Michael's recovery.

Now, sitting here in the waiting room at Oxford, I've realised I'd much rather be doing any of the above. We arrived just before 10am. It's now after 11am, and I'm struggling to stay awake. Michael was called about 15 mins ago for his bloods. I'm guessing that as he hasn't returned, they're having the usual difficulties and he'll either come out black and blue, or they'll give up and take the blood through of his PICC line.

Think this is the busiest clinic has been since we started coming. Think it's going to be a long day .......


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27 January 2012


For those who have read last night's blog, hope the error made you giggle. Michael obviously went back to hospital. For those who have not read it, error already changed so no giggling for you!!


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