Monday

Here we go again - another week. Got up to the hospital slightly later. Had to take Nath to the Orthodontist, drop him back at school and then had to stock up on some lemonade for Michael. He's still rinsing out his mouth as he's not allowed to drink anything and lemonade is the favour of the moment. He was using lucozade which was turning his teeth luminous orange (all natural colouring!!!) and coke - dingy brown colour. His teeth may now not be stained but if he keeps this up, they'll drop out!!

There was no smile to greet me. His temperature reached 40.1 last night - a 'record' as the surgeon hadn't encountered that before. Not quite sure that's the achievement we were after. Michael said the ice he used to cool him, melted on touch. He feels very achy and when he has the temp spikes he says his joints lock - all sounds very flue. They've had no luck in locating the reason behind the temperature and are now starting to eliminate things - he hasn't got malaria; they're now doing a nasal test for flu (obviously not the strain he was vaccinated against); checking for gdf (can't remember what that was and internet taking too long to download on phone to check. Some infection - they take stool sample to check) and various other things. He's come off the antibiotics as they are doing nothing, and he's on various other meds which are slowly being stopped as things are being eliminated.

They are also checking with the other recipients of the donor's liver and kidney to see if they are suffering with any ill effects. This is all so heavy and maybe only now is the reality of 'transplant' hitting me. This not knowing is incredibly draining. I feel like I'm back to when Michael was in the Theatre - my mind's working overtime :(

Michael had his weekly scope today. Surgeon gave him an 8.5/10 whereas last week it was a 9 - another disappointment. Again, nothing to worry about - it's more the biopsy that they're looking at and those results should come back later. Whereas previously the veolar were all floaty and rounded, today some were blunt ended. Sort of new he wasn't as happy as it took him longer to say anything. I obviously asked if this was a problem and how to get back to a 9 to which he said it all related to the biopsy results so again we'll wait. Bet I won't be here when the results return.

Michael's just waiting for his antisickness and then we're going for a walk along the corridor. I'd actually prefer to lock myself in the bathroom and scream but I don't think that'll do either of us any good.

xx

Justine

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