Thursday Evening

Haven't blogged for a couple of days - know Michael's back to blogging and I didn't want to overshadow his blog!!

So nice on Tuesday when the kids came home - they had absolutely no idea that Daddy was coming home as we only found out late morning. Nathan was sitting in the TV room with his friends when he saw Michael's dad's car coming into the driveway. Was beside himself with excitement when he realised Daddy was also in the car - 'my Dad's home', and ran to greet him at the door (together with the faithful dog at his heels!).

Lauren was dropped home by a friend - and had absolutely no idea whatsoever that he was home, until she walked into the kitchen. Another cuddle for Daddy.

Then when I brought Aaron home I told him there was something (as opposed to someone) upstairs for him. How lucky can one man be with so many people happy to see him. I should be grateful for the 'hi' that I got from them!

So how's it been having him home? Well, it's been more than 48 hours - which is longer than last time. Can't say it's been problem free though - have to say, I am feeling a bit stressy with it all. Evening 1 was absolutely fine with no hiccups but last night, after dinner (1 meatball), he had the most terrible tummy ache with a huge stoma output which continued overnight. I won't go into major detail as Michael's been quite detailed in his blog (bit of encouragement to read it if you haven't already). Anyway, he did speak with the hospital today and they aren't hugely concerned as they say it could be anything, even different foods which are affecting things. So for the rest of the day we have been assessing all the foods Michael has eaten - to be honest, it would be impossible to figure out what, if anything has had this effect. It's only going to be by trial and error that we know if there are foods which aggravate things.

Meanwhile, output slowed down completely during the day but after dinner (salmon pate) there's been a huge increase again. I just feel that we're constantly in 'standby' mode for problems - will we ever just be able to relax and enjoy a day? I'm sure we will but it does feel that each time Michael comes home, something changes. In time I guess we'll get used to what's normal and what's not. Although our life never seems to follow that normal path!!

Have to say though it is nice to have 5 of us in the house again. We're taking things very easy; kids are seeing friends, etc so Michael's having some quiet time at in the house.

We'll see what tomorrow brings as it's back to the hospital for blood tests and they'll also decide whether to do another scope/biopsy.

Look forward to giving some positive news tomorrow.

Night xx